I didn’t post an update yesterday because there really wasn’t any new info that we had gotten and her condition was still the same (it was a really low point for her emotionally though and she broke down in tears a couple times which pretty much ripped my heart out.)
This morning she had her endoscopy and colonoscopy and they took a biopsy which we should get the result from soon. However they said it is really looking like Colitis and they are starting to treat her for that. She got steroids a couple times today and continued her antibiotics. They also put in a PICC line so they can feed her since she hasn’t been able to hold anything down for 2 weeks now. They were really nice and let her friend hold her hand through the whole procedure even.
Having her friend stop by today really lifted her spirits higher than they have been since this whole ordeal has started and her energy level seemed to be up too. It was nice to see her smiling again !!!
We did a little research on Ulcerative Colitis to see what foods she will need to cut out and sadly its pretty much everything she likes to eat so she is bummed about that. But we don’t want flare ups so we really need to be careful.
The Drs want to keep her here for a few more days (if not longer) because she is still bleeding quite a bit each time she goes to the bathroom. We will know more about our estimated departure date by Tuesday or Wednesday. I am just glad they aren’t trying to kick us out too soon. I would rather stay here too long than not long enough !!!!
Glad you are atleast getting some answers….Will continue to pray for Kaley and your family
Thank you for the update Amy. I will contain to pray for her and for you.
I still pray for Kaley, i hope she get well soon.
My best wishes for her soon recovery.
Thanks 4 keeping us updated. Will pray 4 healing. Keep looking up.
and she will get used to the new diet i have 4 gi issues and am on three differnt diets but have found that some things they say should be avioded i do ok with but just have to try and see,
i have celac spurs,ibs diverticlitis,and gastric perallissis..
ok so the spelling is horrible..
Hi Amy,
I am glad she is getting better and you are getting answers. I will have Kaley and your family in my thoughts and I will ask for her soon recovery from this condition. It brought tears to my eyes to see that her friend was there with her. I wish I ever had a friend like that. Keep her close by, that is a good friend.
I can’t wait to see you post that everything is ok with Kaley. You are an excellent mommy!
Renata.
Thanks for sharing your story with us. I know this is a private matter and a difficult time but with our prayers, you all can get through this. take care!
I will pray for Kaley. Stay positive.
Please keep us up to date!
Just said a prayer for Kaley and the rest of the family. Nothing is too hard for God.
Wish Kaley gets better soon. Will pray for her and your family. Best Wishes
I wish I could send a hug from and for all the mom’s who have sat in hospital rooms and they kids who are there. (My mom sat for me – a lot!) I am sending a mental one anyway. I will continue to pray for you!
Glad she hax a friend come to see her, hopefully her treatment will work. Tell her she will find new things to like that won’t hurt her body. There is so much food in the world that she is bound to find somethings that are awesome that won’t make her ill!
Still praying for you all. That is an amazing friend to stay and hold Kaley’s hand! We have had to go through many dietary changes with family food allergies and it is hard at first but it gets easier everyday. We also learn quickly that eating what we should not is not worth it. Praying for that too.
Our thoughts and prayers are with you! Keep that chin up for her, you are her BIGGEST SUPPORTER and she needs that!
Niccole LoMonaco
I have a 15 year old daughter too and can only imagine how hard this is. I feel so bad for Kaley and you, but I know she will get better. I will continue to pray for your family!
My best friend was diagnosed in high school and has had it for close to 17 years now. She is still spunky and happy as ever. Medication will work wonders and a change in diet (don’t worry, she’ll get used to it!) will make a huge difference.
I wish her all the best and truly hope for a speedy recovery.
Praying for your family and hoping for a quick recovery
I’m with Sharon, sending hugs and prayers:) So glad to here she is going to home soon. Have a blessed day!!!
One thought to help her heal and for all of you commenting on here about GI issues. Raw honey has awesome healing power and we use it for gastric issues at our house. We just use about a half teaspoon whenever we have stomach issues but it would be beneficial several times a day. Raw honey is actually an ingredient in Neosporin and that is why it heals so well. Here is an interesting article about the healing power of honey. http://www.naturalnews.com/021506.html
Good vibes coming your way, hope things are better soon.
The biggesst
Praying that all goes well for her and your family. Sister you are strong and bold. Fear not because God is going to get your angel back on her feet stronger.
glad to hear that they seem to know what it wrong and she is mending. Thanks for the updates. Having a sick child is one of the worst experiences in the world. My thoughts are with you.
Thank you for the update. Glad her friend was able to be there throughout this whole ordeal:) Keeping you guys in my prayers!
I cannot imagine what you are going through as her mother. Sending good thoughts so that she gets better soon. Keep strong! She is so brave.
Praying for your family.
Still praying for her. Good that she had a better day with her friend’s company.