This morning I got Kaley up for the hospital halloween party and got her into her costume and she said she was feeling really queasy. I figured her tummy was just not liking the new pain meds and told her we should still try to go see what the party was like. We got down to the area where they were having the little “festival” and she said she was in so much pain and didn’t want to stay so we came back to the room. They gave her some more meds and she went to sleep. Since the Dr didn’t come see her until 5:30 she had been sleeping all day and hadn’t gotten up to eat or drink so they said they just couldn’t discharge her knowing she is sleeping all day without eating and drinking and experiencing so much pain after switching meds. When they asked her what she thought about needing to stay, she wouldn’t answer them and kept shrugging her shoulders so they really didn’t have much to go on. They told her if she can show them that she will eat and drink a lot tonight and tomorrow morning, they will consider letting her go again but for now they didn’t want to rush her out of here just to be able to trick or treat. Of course that broke her heart and she had a good cry and isn’t in a good mood now but I told her that we will have a big party once we get home and that even if we got to leave today, she wouldn’t be up for trick or treating tonight anyway.
Since, they have decent sushi in the cafeteria (strange right?!) I told her I would go get that for her. She is eating an Easy Mac cup right now so HOPEFULLY tomorrow will be a better day !