Right after 3 am MRI (I was exhausted)
The last I updated was a week ago but we are still in the hospital. Her pain isn’t as bad but her pancreas and gall bladder are still inflamed so they were doing lots of tests this week to figure out why this could be going on. They did an ultrasound, a CT scan, a HIDA test (for her gall bladder) and a MRCP (a type of MRI). All tests came back normal though so they started looking for other reasons and they think that possibly the small 4 inch section of her colon that is left (and still has colitis) is causing all the inflammation. They are going to do another Endoscopy and partial colonoscopy tomorrow afternoon to see what is going on.
Some good news is that they started her on a nasty tasting med that coats her entire stomach before she eats and she is no longer having any pain from eating (which makes them believe she has ulcers in her stomach or the top part of her small intestines). Her appetite is slowly increasing and her weight has gone up some in the past week.
They also are going to stop the lipids (which is the liquid fat she gets each day) because they found one reported case online where it caused a patient to get pancreatitis so they want to see if this could be causing issues for Kaley as well even though it would be super rare.
Her spirits are up and she has a lot more color to her so now its just a matter of getting her organs to stop being so inflamed so we can leave !!!
Gift Bag filled with goodies from Auburndale Life Church